Breaking Barriers and Promoting Inclusion
Each October, we come together for National Down Syndrome Awareness Month, a time to raise public awareness, foster acceptance, and celebrate the lives of individuals with Down syndrome. This annual observance sheds light on the reality that while Down syndrome is the most common chromosomal condition, it does not define those who have it. Instead, it is one aspect of who they are, and this month is a time to recognize their unique contributions to society.
Down syndrome occurs when an individual has an extra copy of chromosome 21, which affects their development both physically and cognitively. Some common traits include low muscle tone, smaller stature, and an upward slant to the eyes, though these traits can vary widely from person to person. Likewise, cognitive delays are common but are often mild to moderate, and many people with Down syndrome live healthy, productive lives. With advancements in healthcare, the life expectancy for people with Down syndrome has increased from 25 years in 1983 to around 60 years today.
As we celebrate the contributions of individuals with Down syndrome, it is essential to remember that they lead lives like everyone else. They attend school, work, form meaningful relationships, and contribute to their communities in diverse ways. From excelling in sports to engaging in the arts and academics, people with Down syndrome break barriers every day. In fact, Eunice Kennedy Shriver included swimming in the inaugural Special Olympics in 1968, challenging the harmful myth that people with Down syndrome couldn’t swim due to “negative buoyancy.” Today, individuals with Down syndrome participate in endurance events like triathlons and marathons, proving that with the right support, there are no limits to what they can achieve.
One of the largest events in Kansas to celebrate Down syndrome is the Parade of Stars: Down Syndrome Awareness Day of Giving, happening this Saturday, October 7, at Riverside Park in Wichita. The event kicks off with a morning 5K run, followed by the traditional 1-mile walk of fame parade. Participants can enjoy live entertainment, carnival games, and performances by local artists, creating a funfilled atmosphere for families and supporters. The Parade of Stars is more than just a celebration; it’s a critical fundraiser for the Down Syndrome Society of Wichita (DSSW), which helps ensure that individuals with Down syndrome and their families have access to essential programs and services.
DSSW is a nonprofit organization serving not only Wichita but the surrounding areas across Kansas, including Hutchinson, Garden City, Dodge City, and Liberal. The organization provides support to individuals with Down syndrome, their families, medical professionals, and educators through programs like the Summer of Discovery Learning and Exploration, New Parent Outreach, and Explore ICT Adult Life Skills. They also offer specialized programs such as Lazos de Amor, a Spanish-speaking group that brings resources to Hispanic families. These programs empower individuals with Down syndrome to live fulfilling lives while offering their families critical tools to support their growth.
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The Parade of Stars helps ensure these programs can continue to thrive. Funds raised from the event go directly to the DSSW, supporting initiatives like job skills development programs, artist workshops, and continued learning series for parents and caregivers. For some families, these resources make all the difference in navigating the challenges that come with Down syndrome.
In addition to raising money, the Parade of Stars is a platform for advocacy, helping to break down the barriers of misinformation and stereotypes that still exist about Down syndrome. Events like these are essential for promoting inclusion, acceptance, and respect for individuals with Down syndrome. By supporting awareness initiatives, we help shape a future where people with Down syndrome are seen for their strengths and talents, not just their diagnosis.
While the DSSW is actively engaged in these efforts, it’s important to note that the Southeast Kansas Down Syndrome Society based in Chanute seems less visible this year during Down Syndrome Awareness Month. For those in the Chanute area looking to make a difference or share ideas on how to promote awareness and support for individuals with Down syndrome, reaching out to the Southeast Kansas Down Syndrome Society is encouraged. They can be contacted at 620-431-0470 or via email at [email protected]. They are also active on Facebook (@sekdss), where community members can connect and collaborate on initiatives that promote awareness and support.
This year, as we celebrate Down Syndrome Awareness Month, we are reminded of the importance of community support in helping individuals with Down syndrome lead fulfilling lives. Whether through attending events like the Parade of Stars, advocating for inclusive policies, or simply taking the time to learn more about Down syndrome, everyone can contribute to creating a more inclusive society.
For those who are unable to attend the Parade of Stars in person but still want to make a difference, you can scan the QR code at the bottom of this article to donate to the Down Syndrome Society of Wichita or learn more about Saturday’s event. Your generosity helps ensure that DSSW can continue to provide vital programs and services to individuals with Down syndrome and their families across Kansas.
Let this month be a reminder that individuals with Down syndrome have the same dreams, hopes, and desires as anyone else. They want to be included, valued, and given the opportunities to achieve their full potential. By promoting awareness and advocating for acceptance, we can help build a world where everyone, regardless of ability, is celebrated for who they are.
